Purple Stew: Or My Kid's Got What !? was first published in 2000. It included my story of my journey to a diagnosis of a rare disorder for my daughter, Erin. It also featured 8 pages of glossy photos and 24 stories from other families. All 500 copies were sold within two years.
Purple Stew: A Journey to Joubert Syndrome consists of an edited version of my original story. It is available as a FREE DOWNLOAD at www.lulu.com. Enjoy!